Tuberous Sclerosis Canada Sclérose Tubéreuse

Site: Mailing Address

Location, Telephone & Internet
E-Mail tscanadast@gmail.com
Website www.tscanada.ca
Social Media Facebook Instagram Twitter
Located In Community Barrie
Contact Information
Primary Contact Karen Shulist, Co-Chair
Alternate Contact Anne Dorsey, Ontario Contact; Phone: (Residence) 705-739-1271; Email: adorsey@rogers.com
Primary Executive Cathy Evanochko, Co-Chair
Mailing Address PO Box 35057 Essa Road RO 
Barrie, ON L4N 5Z2
Description & Services
Description (Service) Tuberous Sclerosis Complex (TSC) is a congenital genetic disease characterized by certain skin abnormalities and birthmarks, tuber-like growths in the eyes, the brain, and other internal organs, and varying severity of epilepsy and developmental delays  
 
Volunteer run organization dedicated to raising public awareness of tuberous sclerosis complex, encouraging mutual support between families with affected members and promoting research and education
Hours No regular hours
Areas Served Canada
Eligibility No restrictions
Application Call or visit website
Languages English ; French - Website
Fees None
Other Details
Established 1991
Elections June every two years
Physical Access Not Applicable