Tuberous Sclerosis Canada Sclérose Tubéreuse
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Print Version (New Window)| Record #: BAR2740 | Last Modified: 17 Nov 2020 | Last Full Update: 17 Nov 2020 |
| Location, Telephone & Internet | |
|---|---|
| tscanadast@gmail.com | |
| Website | www.tscanada.ca |
| Social Media |    |
| Located In Community | Barrie |
| Contact Information | |
| Primary Contact | Karen Shulist, Co-Chair |
| Alternate Contact | Anne Dorsey, Ontario Contact; Phone: (Residence) 705-739-1271; Email: adorsey@rogers.com |
| Primary Executive | Cathy Evanochko, Co-Chair |
| Mailing Address | PO Box 35057 Essa Road RO Barrie, ON L4N 5Z2 |
| Description & Services | |
| Description (Service) | Tuberous Sclerosis Complex (TSC) is a congenital genetic disease characterized by certain skin abnormalities and birthmarks, tuber-like growths in the eyes, the brain, and other internal organs, and varying severity of epilepsy and developmental delays Volunteer run organization dedicated to raising public awareness of tuberous sclerosis complex, encouraging mutual support between families with affected members and promoting research and education |
| Hours | No regular hours |
| Areas Served | Canada |
| Eligibility | No restrictions |
| Application | Call or visit website |
| Languages | English ; French - Website |
| Fees | None |
| Other Details | |
| Established | 1991 |
| Elections | June every two years |
| Physical Access | Not Applicable |